The idea behind it
To be born with a congenital heart defect is an enormous challenge for the newborn baby that wants to live. This is also true for parents and siblings whose lives will be subject to an additional permanent change. This diagnosis causes helplessness, fear and anxiety and an exorbitant demand on the resources of the family.
This tremendous challenge applies to the medical professionals involved as well. They are often the heroes of the first hours. Without the skills and progress in prenatal and pediatric diagnostics as well as in cardiology for children the options for the life of the newborn baby would be far more difficult if not impossible.
The diagnosis itself is a challenge. Heart and pain are invariably closely linked during most phases of life.
Congenital heart defects are the most frequent malformations in humans. Statistics show that about 0.8 - 1.0 % suffer from such defects, i.e. about 5 million Europeans.
This does not include those who are not directly affected – the families and the social environment, which the children encounter in the process of growing up. Children, adolescents and adults with heart defects need to continuously rediscover and activate special resources. Therefore the science of psychotherapy surely has sufficient reasons to deal with such varied defects and the impacts they have on so many lives.